Purvis grandparents hold benefit to help grandson with rare disease
PURVIS, MS (WDAM) -
Back in September 2012 Purvis residents Jeffrey and Melinda Jones hosted a car show benefit for their grandson Jacob Jones. More than a year later, the grandparents held a gospel sing benefit on Saturday for their grandson, who has Infantile Tay-Sachs.
“Jacob's medical expenses are astronomical,” said Melinda Jones. “They do have insurance, they do have Medicaid and they do have other assistance through St. Jude's and other programs, but it just doesn't cover the equipment that he needs, the daily things that he needs.”
Along with the gospel sing, thanks to family members, friends and residents, the event also included a silent auction, various arts and crafts vendors, and a bake sale.
“I just thank them so much, just you know, for people take time out their lives to come and do things for us is pretty amazing,” said Jacob’s father, Justin Jones.
At the age of 3, the genetic disease does not allow Jacob to walk, crawl or even be able to hold his head up. Although there are many things that he may not be able to do, his father Justin is grateful for everyone’s help and he hopes to continue providing his son with all the help he needs.
“It's pretty rough on him,” said Justin Jones. “The disease is a terminal disease, but we just we just try and strive to give him you know the best that we can, the best care you know, and just make it as happy and as great for the time that he's with us.”